Sick of all this cancer?

Sick of all this cancer?

Nicole Scobie blogs about her adventures in “Cancerland and Switzerland.” This most recent post is spot on. Please take a few moments to watch Erin (who is battling DIPG) and then read Nicole’s post about Erin’s mom Amanda and the reaction of her “friends.”

Kids with cancer need your financial support. They need research for them. They need all of us to teach our children about friendship, love, caring for those who are injured or sick, and loyalty.

Parents of children with cancer need your compassion, empathy, and listening ear, not your pity.

Blank Pages

It is always surprising to me how the various areas of my life converge. Not surprised in a “Oh my gosh, how did THAT ever happen?” way but, more of a sheepish, “I shouldn’t be surprised, because of course that is how life is!” way. Lately, I have been wanting to write more. Professionally about my dissertation research and my own journey as a mid-career mom. I have also been wanting to write about our journey through childhood cancer and how it is has impacted our marriage, our family, our faith, and our future.

Yet, excuses always stop me.

I don’t have time (not true).

Who am I to pretend to know about these things (well, I am someone who has lived them).

No one wants to hear what I have to say (if true, who cares?)

Two things recently happened within weeks of each other that have finally pushed me to sit here and write.

First, I was invited (thank you godesses!) to a meeting about how to write for publication. In that meeting, the Dean of my college asked me, “so Monica, when are you going to publish your dissertation?” Later in that meeting a colleague whom I deeply respect and admire said about her own research, “well, it’s not research if it’s not disseminated. I owe it to my participants.”

Gut check.

Isn’t this why I landed on my own topic as well? To learn something from my amazing participants and then, have the profession learn from their experiences as well?

Second, a young cancer warrior named Zach Sobiech died on Monday morning. Many people the world over know Zach because of his beautiful, soulful song, “Clouds.” We “know” Zach because he is a student in my sister-in-law’s youth group in Stillwater, MN. I am friends with his mom on Facebook and have occasionally written to each other as the moms of cancer warrior sons. Laura has documented Zach’s journey on his Caringbridge site. Her words, Zach’s life are awe-some, in the truest sense of that word. Laura recently wrote:

“Blank pages can be very frustrating and intimidating.  Where do I start? What words do I settle on this blank page when there are so many words clattering around in my head?  Sometimes it’s just easier to walk away and leave it blank. But, it’s our story.  It’s Zach’s story.  And I need to reign in these words and lay them out for today and for tomorrow.”

Gut check 2.

So, with that, no more blank pages on this blog that I started almost 2 years ago. I now have 2 goals for Summer 2013:

1. End the summer with a submittable journal article about my dissertation research. Submit to peer reviewed journal by August 31, 2013.

2. Blog, about whatever I want/feel, once a week.

The ten amazing women who were participants in my dissertation research have a story. I should help them tell it. I have a story. My son has a story. Maybe he will want to have these words to go back to someday. Maybe not. That’s okay. Either way, I have a voice. I want to write. I am going to try harder to do more of it. I appreciate your cheering along the way. Thank you.

Playing hooky with my friends

3 #ReverbBroad posts for the price of one!

June 11
If you were to play hooky from work today, what would you do instead?
Krissy

I would actually need at least four days to play hooky. One day to drive to New Jersey to pick up my sisters (my first best friends). Two days to spend at the beach, while “down the shore.” One day to drive back to reality.

While at the beach, I would sleep, read, and eat myself into oblivion. After a day of “sunbathing” (with full-on sunscreen and a huge hat, because now I know better!), we would eat seafood and drink ice-cold beer. Then, we would stroll up and down the boardwalk. I would not care that the sea air was making my hair too curly. I would eat a Kohr Brother’s orange & vanilla soft-serve custard, on a cake cone with rainbow sprinkles. I would fall asleep with a smile on my face, while the ocean lulled me into a deep, dreamless sleep.

June 15
Who was your first best friend?
Kristen

I always struggle with questions that force me to quantify or label things. First, best, favorite…I am not a fan of absolutes. But, this absolute question was actually easy. I am fortunate to have two amazing younger sisters whom I also count on as my best friends. It was not always this way, I am sure. Of course we fought, and teased, and were mean. That is what sisters do. But, under all of that sibling stuff, there has always been genuine love and affection for each other. We have always cheered for one another. We have supported each other through break-ups (“Of course he is a jerk! Let’s burn all the stuff he ever gave you!” True story.) We stood up for each other at weddings (nice bridesmaids’ dresses) and have consoled and counseled each other through motherhood, breastfeeding, work-life negotiation, and suburbia. My mother was right, “there is nothing like a sister.”

June 17
What three things do you want more of in your life? What three things do you want less of?
Krissy

More

1. Friends. I had no idea that this time in my life would be so isolating. I have friends. My sisters. A few from high school. A few from college. One from graduate school. One from my year as a Holy Cross Associate (Americorps Volunteer). One from my first job. But, all of these people are far away. Across the country far away. I am slowly meeting people at work and at my sons’ school. But, I would not necessarily call these current people friends. I have a lot of acquaintances. I have a lot of women in loose circles whom I respect and admire. I have a lot of people that I would really like to get to know better. I have a mentor (thank GOD for her!). But right now, I would really love a soul-sister. A fellow girlfriend I can go walking with, get my nails done with, have drinks with, call up and vent about my day with. This type of friendship is hard to come by and takes time to nurture and develop.

2. Exercise. The mental and physical benefits of this are self-explanatory.

3. Organization/Motivation. Confession: I am not exactly sure what I am doing with my time these days. I feel busy all the time. Distracted. Yet, very little seems to be getting done. There is always laundry to fold, dishes to wash, toilets to scrub, a garden (first one ever) to weed and water, maternity clothes to donate, on and on and on. I don’t want to fall into whining (too late?) so I will stop here. I would love to be organized and motivated.

Less

Gold Ribbon

Kids get cancer, too!

1. Childhood cancer.

2. Childhood cancer.

3. Childhood cancer.