BE the hope

The world is heavy right now and it seems every day brings a new crisis. I don’t know about you, but I’ve been feeling overwhelmed.

So, when I had a recent opportunity to ๐“ซ๐“ฎ the hopeful one, I took it. And you should, too.

Last week, we were at the long-term follow up clinic. After his appointments (with 5 specialists) we made an extra stop to the oncology floor. Saw two of our favorite nurses- Nurse Pam (inpatient, days) & Nurse McDoodle (outpatient clinic). Her name isn’t Mcdoodle, that’s just what our 3 yr old called her.

They were โ€‹๐Ÿ‡งโ€‹โ€‹๐Ÿ‡ชโ€‹โ€‹๐Ÿ‡ฆโ€‹โ€‹๐Ÿ‡ฒโ€‹โ€‹๐Ÿ‡ฎโ€‹โ€‹๐Ÿ‡ณโ€‹โ€‹๐Ÿ‡ฌโ€‹ while looking at him & marveled at his 17 years of survivorship. Pam hugged me hard & she cried just a bit.

It would have been easier to just leave. We would have been home an hour earlier, back to the realities of school and work.

But something told me to go to the 7th floor & see if they were there. I’m so glad we did. In their line of work, they see a lot of sick kids & distraught parents. It’s important that they see kids who make it; kids who made it in part ๐“ซ๐“ฎ๐“ฌ๐“ช๐“พ๐“ผ๐“ฎ of them.

I took pictures and sent them. Pam wrote: “Thank you so much for these! You have no idea how good visits like these are for my soul ๐Ÿ’•โค๏ธ”

Who in your life could use some hope right now?

How can you challenge yourself to be that person for them?

* Forward the job posting.
* Make an introduction.
* Write a LinkedIn recommendation.
* Volunteer.
* Bring someone a meal or flowers.
* Write a thank you note.

Since our visit, I’ve felt better than I have in months. I’m going to focus on keeping this momentum going. Want to join me?

You’ve got this! I’m rooting for you!



Resilience isn’t shiny

I have thought about this a LOT. But I bristle when people tell me that my children are resilient (our survivor and his younger brother). “He will be fine. He won’t remember anything. Kids are so resilient.” ย Someone, usually someone who has not walked in these shoes (thank God), would say it to me while L was experiencing a painful procedure or especially rough round of chemo or C was acting out because he missed us and there was no routine. No one ever physically patted me on the arm while saying this, but they might as well have. “Kids are resilient” is like the trauma version of “Bless your heart!”

NO.

Children are NOT resilient. Resilience is looking fear in the face and carrying on anyway. Children are not yet afraid. They do not know how to be resilient. What children are is fearless, in the truest sense of the word. They have no fear. Look into the eyes of a 4 yr old boy about to jump off the top step or soar through the air from the swings. He is fearless. He wants to fly! If he is afraid, it is because we have taught him to be careful, to fear the potential consequences.

Childrenย have an inborn sense of JUSTICE, of fairness, of what is right and true. They know what is right and what is wrong and what is normal. And they will fight to do what is normal. They want to be.kids.

One of L’s nurses is in this #NursesWeek video from Mott. Listen carefully to Nurse Pam at the 7:15 mark:

Kids are kids first. And sick kids second. Or third or fourth. They’re really not interested in being sick. They’re really just here being kids. They want to go to the playroom.

Amen.

Thank you Nurse Pam, and many others at Mott, who really saw our son and our family. You modeled resilience for us. You see people at their most vulnerable and you still care. You held our hands, you let us cry with you. And then you came back the next day and did it again. You are resilient.

This quote was posted in Quiet Revolution, LLC’s Facebook page:

Everyday courage

Everyday courage

To which I responded: “Too often we make resilience shiny. It isn’t. Resilience is dirty. It’s hard work. It’s a choice we make, usually without fanfare or notice from others.” Susan Cain herself liked it. And then she favorited my tweet about it. (Yeah, I was geeking out about it!)

Making resilience shiny puts it on a pedestal and thus harder to achieve. If resilience is perfect and out there, then it is for other people. Don’t do that. Don’t put distance between yourself and resilience. That is a huge disservice to you and your story.

Resilience is: modeled, learned, chosen, and practiced. You don’t do it once and it sticks. It is a constant re-learning and re-choosing. Getting up once doesn’t make you resilient; and failing once or twice doesn’t make you not resilient. Resilience is a lifelong journey, an opportunity to choose growth over defeat, light over darkness, joy over suffering.

So no, my children are not resilient. They are fearless. I will learn that from them. They will learn resilience from me.