Table Read

This afternoon we had a table read for the Listen to Your Mother Metro Detroit Show. Doesn’t that sound so cool? Table read. Like a TV show. One of the other cast members said, “Oh I love Shonda Rhimes! And now, I feel like her!” Who doesn’t want to be Shonda Rhimes?

We met at Alternatives for Girls in Detroit. AFG is changing the lives of homeless girls in Detroit; and they are the beneficiary of our LTYM ticket sales. You can check out the amazing organization here.   There were 15 women in the room, all there to share their stories about motherhood. We sat in a circle, chit-chatted and ate some lovely donated pastries. Thank goodness I didn’t give up dessert for Lent! Our show’s producers- Angela, Angela, and Jessica– didn’t want us to introduce ourselves too fully. They wanted us to know each other through our stories and to read them the way we did in our auditions. This is also how the audience will experience them at the show on May 4. No frills. Women and their stories will take center stage.

I arrived at the table read today nervous and confident. I was nervous to read my full audition piece in front of my fellow castmates. But, I had been chosen from among 50 other women writers who auditioned so I was a little confident, too. I thought that my story and my writing would be among the best in the group. They were neither of those things. The talent of other writers absolutely blew my face off. The raw emotion that the other women captured using only their words was awe-some. And, I did the ugly cry throughout my entire five minutes of reading. Blerg.

On the drive home and the rest of the evening I have been thinking about the women in my circles. The childhood cancer community is like the PhD community. When everyone else in your circle has what you have or is in the process of getting one (a PhD) or experienced what you experienced (childhood cancer), it is easy to become insular and isolated. Only about 3% of American women has a doctorate. I detest the word “rare” when speaking about children with cancer because I believe it dilutes the power of our message and the need for more research funding. However, the number of children diagnosed each year is small. And with only 350 new cases of rhabdo each year, L’s diagnosis was even more rare. Basically for the last 5 years, I have been with people who are exactly like me. This is not a bad thing. I needed and still need those networks of women, especially my fellow momcologists and student affairs parents. I will always need them. But today I learned that as a result of my closed circles, I have lulled myself into thinking that my story, our story, our journey is unique, or would win some prize for most traumatic or most tragic. Not true.

There is no prize for tragic. There is no hierarchy of suffering or pain or misery or grief. There were women in that room today who shared about infertility, divorce, adoption, losing children, burying their parents. And all of this was going on at the same time I was living my own story. Parallel lives. From December 2008 until March 2010 I kept wondering how the world was still spinning. How was it still going while my baby was suffering so horribly and while S and I were so utterly terrified and exhausted? Turns out, most of the other women in that room today were wondering the same things. About their own lives, their own children, and marriages, and parents.

Jessica, one of our directors, said that this experience has made her more patient and more tolerant. That you really never know what someone else has experienced. That people have reasons for the way they act. Everyone has a story. Every.one.

What a gift, honor and privilege to be in that room today. To my fellow castmates, thank you. You are inspiring. And, I thank you for pushing me to want to be a better writer. I can’t wait for dress rehearsal in April and the real deal on May 4, 2014!

Snark is my sugar

Today is Ash Wednesday and the beginning of Lent. As a Catholic Christian, Lent is an important time for me. It is a 40 day journey (47 if you count weekend days) toward Easter. It is a time to pray better, reflect more, and strive to end the journey different than when I started. I hope to have a stronger relationship with Christ as a result of this Lenten journey. I hope to have a stronger relationship with myself as a result of this Lenten journey.

Every year I start Lent with great enthusiasm. I actually love Ash Wednesday. I love getting ashes. I love that the ashes come from burning the palms used  on Palm Sunday the  previous year. The cyclical nature of the Church’s seasons is very comforting to me. Catholics also do symbols really well. I love the symbolism of the ashes- “remember that you are dust and to dust you shall return.”

In my circles (very small ones on Twitter and Facebook), there is talk about “what did you give up for Lent?” There are many great responses- eating out, cursing, sweets, caffeine, Facebook, sugar. I decided a few days ago that I was going to take a huge personal risk (Risk is my #oneword2014) and give up public postings of snark. For 47 days, I will try to make all of my public posts, wall comments, and tweets positive. I will not post sarcastic, snarky things in response to what I read.

This is a huge deal for me. Snark is my sugar. I love snark. I am addicted to snark. Snark is hard to resist. It feels so good going down.

I use snark to be funny and self-deprecating, to put others at ease, to feel smart. I used to think that my snark was justified because I am from the east coast, smart, and been through more than most of my peers. While these things may be true in my head, they do not matter to the outside world.

Several people whom I know and love have told me that I am direct. I thought this was a good thing. I say what I mean and I mean what I say. What you see is what you get. These are good things. In context. With people who know and love me and whom I know and love. Snark is not a good thing without the context of relationship.

I am slowly learning that snark is my shield, my armor, my way to strike first. It also creates distance. It puts the receiver on the defensive, or leaves them confused. That is the opposite of the impact that I want to have. This is the opposite of the impact that I do have with the students, colleagues, and friends who know me well.

Snark is my sugar. It is so, so good going down. But after a bit, the sugar high wears off and I get a headache.

So, this Lent, I am going to try really hard to give up snark. I am going to be honest and positive, not direct and snarky. I am going to challenge myself to start, endure, and finish Lent strong. I am taking a huge risk by doing this and by telling you all about it. I welcome and appreciate your love, prayers, and words of encouragement.

Thank you, Jimmy!

Dear Jimmy Kimmel,

Thank you for taking the time to invite our friend #SuperMax to be on your show. I met Max and his Momma Audra in 2012. Audra and I are part of the 46 Mommas. We’re moms to kids with cancer, shaving our heads to raise money and awareness for the St. Baldrick’s Foundation. As I am sure you know from meeting them, Max and his family are forces of nature. They are not like other people. They DO things to make others better. They DO things to make the world better. They have ideas and then they make them happen.

Children with cancer go through so much. Too much. And Max has been through more than most. Our children endure so much that most of the popular media has turned a blind eye to them. I don’t understand why children getting cancer is not newsworthy. I don’t understand why our children dying from cancer is not newsworthy. It’s not though.

But you wearing a rainbow #SuitoftheLoom and then auctioning it off for charity has gone viral. Thank you for doing this. Maybe it was for ratings. Maybe you needed the publicity to make yourself feel better. I don’t know. I don’t care. I care that you did it and now the world is watching.

I bet that after meeting Max and his family, you are feeling some things: Awe. Amazement. Wonder. Gratitude. Disbelief. I keep watching this clip of you and Max. I see you getting choked up. I am moved by watching you be moved by this small, brave, strong, kind boy. Please don’t stop. Please continue to be moved by him. Please don’t turn away.

Please lean in to those feelings and keep supporting him and the 1,000s of kids like him. 1,000s. Children with cancer need people to stand up for them and be their voice. To raise awareness and desperately needed money for research. You are doing a good thing. People are watching.  And many #childhoodcancer parents like me are grateful.

Love from your new fan,

Monica